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Friedreich’s ataxia life expectancy

Introduction Living with Friedreich’s Ataxia (FA) demands courage and adaptability. This progressive neurological disorder affects individuals like Sarah Thompson, a...

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What part of the brain is affected by Friedreich’s ataxia?

While F A is relatively rare, it is the most common form of inherited ataxia. It is sometimes confused with...

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What are the speech-related issues in F A?

The main problem is dysarthria, which means a motor speech disorder, not a cognitive speech disorder. Cognition is generally intact...

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Rethinking Superhuman Strength as Someone With FA by Kendall Harvey

On October 21, 2022 By voicesoffa
  • Youtube Videos

Most of us have probably heard inspiring stories about “mom strength,” “superhuman strength,” or “hero strength.” This phenomenon, known as

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‘Don’t Look Back in Anger’: Lessons Learned During Football Season by Kendall Harvey

On October 20, 2022 By voicesoffa
  • Youtube Videos

I grew up in Katy, Texas, and in keeping with the Texan stereotype, I was a cheerleader who married my

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Rethinking Superhuman Strength as Someone With FA by Kendall Harvey

On October 19, 2022 By voicesoffa
  • Youtube Videos

Most of us have probably heard inspiring stories about “mom strength,” “superhuman strength,” or “hero strength.” This phenomenon, known as

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Practicing Emotional Control in Life With FA
by Kendall Harvey

On October 18, 2022 By voicesoffa
  • Youtube Videos

I’ve always been an emotional person. I feel everything with great depth and have a long memory, and while I

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FA Progression No Longer Has Total Control Over My Life
by Kendall Harvey

On October 16, 2022 By voicesoffa
  • Youtube Videos

It’s no secret that I struggle both mentally and physically with the relentlessly progressive nature of Friedreich’s ataxia (F A).

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I’m Trading My Disabled ‘Scarlet Letter’ for Joy by Kendall Harvey

On October 15, 2022 By voicesoffa
  • Youtube Videos

Many have read Nathaniel Hawthorne’s novel “The Scarlet Letter,” but in case you haven’t, the main character, Hester, is forced

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Bend or Break by Kendall Harvey

On October 14, 2022 By voicesoffa
  • Youtube Videos

Life is made up of choices, and after hearing the words, “Kendall, I am sorry to say this, but you

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My Body Is No Longer an ‘Instrument for the Accomplishment of My Will’

On October 12, 2022 By voicesoffa
  • Youtube Videos

My will for life is a fulfilling existence in which I embrace the opportunity, enjoy every available experience, laugh often,

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Life Goes On, Even When I’m Consumed by FA

On October 11, 2022 By voicesoffa
  • Youtube Videos

I haven’t yet mastered how to handle the fact that the world goes on around me when my life is

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MIN-102

On October 10, 2022 By voicesoffa
  • Youtube Videos

MIN-102 is an orally bioavailable selective PPAR gamma agonist that is one of the metabolites of pioglitazone and has been

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