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Friedreich’s ataxia life expectancy

Introduction Living with Friedreich’s Ataxia (FA) demands courage and adaptability. This progressive neurological disorder affects individuals like Sarah Thompson, a...

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What part of the brain is affected by Friedreich’s ataxia?

While F A is relatively rare, it is the most common form of inherited ataxia. It is sometimes confused with...

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What are the speech-related issues in F A?

The main problem is dysarthria, which means a motor speech disorder, not a cognitive speech disorder. Cognition is generally intact...

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It’s only a phone. It lets me be smart! By Terry O’Hanlon

On November 18, 2021 By voicesoffa
  • Youtube Videos

According to Deloitte, smartphone penetration in Australia is at almost the highest level in the world, at 88% in 2017.

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A view on meteorology from a physicist By Terry O’Hanlon

On November 17, 2021 By voicesoffa
  • Youtube Videos

Identifying biomarkers that support prediction as FA progresses is important for many reasons; for example, robust biomarkers are of immense

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Learning to Grow Through What I Go Through With F Aby Kendall Harvey

On November 16, 2021 By voicesoffa
  • Youtube Videos

While I am increasingly losing control over what my body goes through, I can grow in other ways. I can

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Mystery girl by Ashlee Dolby

On November 15, 2021 By voicesoffa
  • Youtube Videos

After waiting for what seemed like forever for a diagnosis, it didn’t take me long to get my head around

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Spiritual Healing by Leah Alstin

On November 13, 2021 By voicesoffa
  • Youtube Videos

I am at a stage in my acceptance of Friedreich’s Ataxia, where I am not always looking for a cure

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The power of social media by Leah Alstin

On November 12, 2021 By voicesoffa
  • Youtube Videos

I am a fara Ambassador so I have made it my goal to get to know as many people with

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What goes up, must come down by Leah Alstin

On November 11, 2021 By voicesoffa
  • Youtube Videos

I don’t want to have FA. I don’t want to use a walker. I don’t want to fall over. I

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Life is better when you’re smiling by Leah Alstin

On November 10, 2021 By voicesoffa
  • Youtube Videos

FA sucks. It really does. It is a cruel, disgusting condition. A ticking time bomb. But, it has helped shape

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Finding Hope Amidst a Debilitating Disability

On November 9, 2021 By voicesoffa
  • Youtube Videos

I am now 27 years old, a university-graduate, a FA ambassador and advocate, I am on the board of a

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I live my life out loud by Sam Dwyer

On November 8, 2021 By voicesoffa
  • Youtube Videos

I am now 27 years old, a university-graduate, a FA ambassador and advocate, I am on the board of a

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