Voices of Friedreich's Ataxia (FA)

Long story short, it is hard. It is emotional. It is not what you had planned at this stage of

Most importantly, I will remind myself that being in a wheelchair isn’t the end of the world. Yes, it’s inconvenient.

No one is guaranteed tomorrow, and no one knows what the future holds. All we can do is our best,

I get so wrapped up in my negative feelings about my forced spectator point of view that I forget the

My advice to others with FA is to step out of their comfort zone more often. It’s easy to let

One of the aspects I avoid thinking about or sharing about Friedreich’s Ataxia is how it is a life-shortening disease.

I am reminded that there can be peace in the “and,” that it is possible to fear a loss of

That’s not to say that I am no longer afraid of what F A has in store for me, but

I am so thankful for the people and events that shaped me into who I was before FA, and for

In summary then, there’s an enormous amount of research going on in FA right now, and exciting progress is being