Voices of Friedreich's Ataxia (FA)

Now that I am in the phase of life I once desperately dreaded — dependent on mobility aids — I

My body may have forgotten what it’s like to be “normal,” but the accompanying feelings of frustration, longing, and struggle

Your weakness will become your strength. When you wake up every morning, make the difficult decision to embrace your reality

As a Friedreich’s ataxia (F A) patient, my options for exercise are limited. I can’t go to kickboxing or step

I know that, as I continue to progress, I will long for the ability to walk (assisted and unassisted) even

by Kendall Harvey Lately, I’ve been really struggling. I’m burnt out from fighting my body every second of every day.

Yes, it will be slow. Yes, it will be unsteady. Yes, it will be hard. And no, I won’t win

You grow more than you ever thought possible. You laugh harder, cry harder, love harder, and pray harder than you

I deserved an enjoyable vacation as much as everyone else there, and the help requested and given was less of

In the last eight years with FA, I have grown more than I ever thought possible. I regularly laugh harder,