Voices of Friedreich's Ataxia (FA)

I don’t know if I will ever return to celebrating Aug. 19. I think the weight of the day gets

Life with Friedreich’s ataxia (FA) requires constant adjustment and acceptance. I have to adjust to new symptoms regularly, whether they

Kids are a lot more resilient and flexible than we give them credit for. While I assume they wouldn’t have

Yes, I have Friedreich’s Ataxia. Yes, I use a walker because my FA has control of my legs. But FA

I felt equal parts disabled and victorious today. I tackled Costco solo. The carts at this Costco are really far

This entire experience made me realize that I am not “normal,” I am disabled. I am unable to walk unassisted

So, for now, looking at it from my kids’ perspective, I will appreciate my walker for what it is —

My toddlers’ mood swings and potty training will pass. COVID-19 will pass. Holiday busyness will pass. Aches and pains will

Today, I learned that a new symptom associated with Friedreich’s Ataxia has reared its ugly head and is here to

This was a valuable lesson for me. As someone who loves to embrace the moment and be a part of