Voices of Friedreich's Ataxia (FA)

I am grateful that my children won’t have to fight the battle against FA personally. I am humbled that my

I am proud of both versions of myself. I am thankful for both categories of friends and for the roles

Yes, I wish that my ability to be the mom I want to be wasn’t hindered by my disability. But

I am honored that people care enough to ask. I am proud when they say kind things, such as, “You

I don’t always make the right choices. I don’t always choose gratitude, optimism, hope, and light, as that is not

For better or worse, I am the only mom that my kids have. I need to be gracious and let

When the world stopped for COVID19, Friedreich’s Ataxia didn’t stop. My progression didn’t stop. However, physical therapy did. I missed

I never expected to be a disabled mom. But here I am, embracing my handicaps and making the most of

My whole life I have LOVED swimming. It has always been a huge part of my life. Even after Friedreich’s

Yes, FA is a frustrating and ever-progressing obstacle. Although my abilities are strained and limited, I am thankful for my