Voices of Friedreich's Ataxia (FA)

It doesn’t say to ignore the other things, it just says to think about the good things. Spend time reveling

When will it happen, and how will it look? I’m not yet sure. My physical therapist and I are working

At times, it feels like I am surrounded by the burden of FA, but I am so thankful for weekends

When I ride my trike, I get a lot of looks. People will say, “That looks fun,” “My turn next,”

Every morning, Collins sees me take my clinical trial study drug. She sees my hope and frustration. She sees everything.This

So incredibly thankful for my mobility service dog (in training) and the hope, companionship, purpose, and joy that he brings

This year was a roller-coaster ride full of hopes, fears, triumphs, heartaches, and trials. Problems persisted, trials were resolved, obstacles

I guess that the new year brought a more pragmatic approach to my FA, rather than an emotional and idealistic

With the progressive and degenerative nature of my symptoms, I can’t necessarily make my body feel better, but I can

I will appreciate this spring for what it is. We can clear out overgrown bushes and trees in our yard