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Voices of Friedreich's Ataxia (FA)

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Friedreich’s ataxia life expectancy

Introduction Living with Friedreich’s Ataxia (FA) demands courage and adaptability. This progressive neurological disorder affects individuals like Sarah Thompson, a...

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What part of the brain is affected by Friedreich’s ataxia?

While F A is relatively rare, it is the most common form of inherited ataxia. It is sometimes confused with...

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What are the speech-related issues in F A?

The main problem is dysarthria, which means a motor speech disorder, not a cognitive speech disorder. Cognition is generally intact...

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How I Protect My Blindside From FA by Kendall Harvey

On February 5, 2022 By voicesoffa
  • Youtube Videos

Protecting my blindside from FA is a time-consuming task, but it’s worth the effort. And the greatest team has assembled

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How I Respond to Pity as a FA Patient by Kendall Harvey

On February 4, 2022 By voicesoffa
  • Youtube Videos

All of this is to say that pity is normal. It is a human reaction that plays a vital role

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It Takes a Village to Live With FA by Kendall Harvey

On February 3, 2022 By voicesoffa
  • Youtube Videos

I am dependent on my various villages. I am thankful for them and in awe of how they work together.

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On Good Days, I Fear the Sleeping FA Giant by Kendall Harvey

On February 2, 2022 By voicesoffa
  • Youtube Videos

Having an antidote to fear can help you reign it in and keep your fear from helping your giant defeat

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Tomorrow with FA by Kendall Harvey

On February 1, 2022 By voicesoffa
  • Youtube Videos

My family and I are loading up to drive to Dallas for rideATAXIA with my (F A) family on Preparing

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The Battle Between Taking Care of Myself and Letting FA Ruin My Life by Kendall Harvey

On January 31, 2022 By voicesoffa
  • Youtube Videos

Having FA is a lot of work. Battling fatigue is exhausting and ever-changing. There is no quick fix for this

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Finding Peace in the “AND”By Kendall Harvey

On January 29, 2022 By voicesoffa
  • Youtube Videos

Motherhood is a lifelong calling. We will go through so many phases, experiences, events, milestones, and setbacks, and there is

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The Balancing Act of FA by Kendall Harvey

On January 27, 2022 By voicesoffa
  • Youtube Videos

Making memories, sharing experiences, trying new things, and maintaining traditions are worth the effort. Life is worth the risk. But

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New Mobility Aid Blues by Kendall Harvey

On January 26, 2022 By voicesoffa
  • Youtube Videos

This latest tool in my Friedreich’s Ataxia mobility aid arsenal has me feeling blue. I have had a handful of

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Walker Buddy by Kendall Harvey

On January 25, 2022 By voicesoffa
  • Youtube Videos

My kiddos each got a new kitten from Santa this year. Brooks’ cat, Travis, loves to ride around on my

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