Voices of Friedreich's Ataxia (FA)

My 3-year-old daughter cracked herself up the other day when she said, “Come on, Momma, let’s walk and roll!” That

What I do know is that FA is rare and complicated. Sharing all the details would be a lot of

I don’t think youth is wasted on the young, but occasionally, I feel that ability is taken for granted by

For me, my walker helps to give each emotion time and respect. It helps me adjust to the ever-changing perspective

Yes, I am strangely relieved to have my diagnosis, but that doesn’t mean I am going to accept what it

Not only has all of this taught me so much about the science of what makes me who I am,

Most of all, I am thankful for hope. I am thankful that everything I’ve mentioned is creating a brighter, FA-free

At first, my walker made my disability feel like the elephant in the room. I felt like I was advertising

When I was first symptomatic, I tried so hard to look “normal” when I was in public and around complete

Last, but certainly not least, I ask God to shine through me every single day. I lean on him for