Voices of Friedreich's Ataxia (FA)

Yet this is the reality of my disease. My body is less capable than I ever expected or wished for.

Next time someone tells me that I am strong or courageous, instead of immediately dismissing the thought because I am

It can be disheartening to see my walking getting worse despite all of the squats I do, physical therapy sessions

For now, I will keep fighting against my tendency to long for an easy, carefree life, because that life doesn’t

I can’t control my future, but I can control how I face my present. So, I will keep leading the

If my wheels could talk, I think they would accurately tell the tale of a young woman doing her best

There are days when mothering a kindergartner and a toddler is just too much for my broken earthly body. When

It truly takes a village to accomplish a herculean task like curing a rare disease. If the FA community keeps

Adrenaline had kept me from feeling the full extent of my injuries, which I always will be grateful for. Yet,

Going forward, when I describe FA as relentless, as I often do, I can now imagine FA describing me that