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Voices of Friedreich's Ataxia (FA)

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Friedreich’s ataxia life expectancy

Introduction Living with Friedreich’s Ataxia (FA) demands courage and adaptability. This progressive neurological disorder affects individuals like Sarah Thompson, a...

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What part of the brain is affected by Friedreich’s ataxia?

While F A is relatively rare, it is the most common form of inherited ataxia. It is sometimes confused with...

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What are the speech-related issues in F A?

The main problem is dysarthria, which means a motor speech disorder, not a cognitive speech disorder. Cognition is generally intact...

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Having FA + A New Puppy = Craziness by Kendall Harvey

On March 12, 2022 By voicesoffa
  • Youtube Videos

I am glad that I didn’t overthink the decision to get a new dog. My family would have missed out

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Pros and Cons of Mothering with FA by Kendall Harvey

On March 11, 2022 By voicesoffa
  • Youtube Videos

Parenting is emotional no matter your health, so it’s no surprise that parenting with a chronic illness is a roller

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It’s OK to Ask Me About FA by Kendall Harvey

On March 10, 2022 By voicesoffa
  • Youtube Videos

All this is to say: I am happy to talk about FA, but I usually won’t bring it up first.

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Trust by Kendall Harvey

On March 9, 2022 By voicesoffa
  • Youtube Videos

Love this reminder as I (im)patiently await a cure for Friedreichs Ataxia. Life is beautiful, even with this ugly disease.

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Celebrate Every Victory by Kendall Harvey

On March 8, 2022 By voicesoffa
  • Youtube Videos

FA is emotional. I feel hopeless, exhaust,ed and terrified about my future. I feel like I’m carrying a weight that

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Fairy Tales, Dreams, and a Cure for FA by Kendall Harvey

On March 7, 2022 By voicesoffa
  • Youtube Videos

I appreciate the underlying narrative of the stories in which kindness, strength, goodness, love, and bravery triumph over hardships. I

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 How I’ve Adapted to Being Disabled in an Able-bodied World by Kendall Harvey

On March 5, 2022 By voicesoffa
  • Youtube Videos

I often feel like my walker is a barrier between me and the able-bodied world when really it is my

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Behind Closed Doors: Why I Share the Reality of FA by Kendall Harvey

On March 4, 2022 By voicesoffa
  • Youtube Videos

If you really want to know what life with FA is like behind closed doors, scroll through my collection of

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Choosing to be SILLY by Kendall Harvey

On March 3, 2022 By voicesoffa
  • Youtube Videos

My kids are SUPER into hiding and seek right now. They play it with Kyle for about 45 minutes every

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Growing Bigger Than Friedreich’s Ataxia Kendall Harvey

On March 2, 2022 By voicesoffa
  • Youtube Videos

Life is full of possibilities and chances to do your best. Even if your best looks different than you expected,

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