Voices of Friedreich's Ataxia (FA)

Symptoms of FA includes loss of coordination (ataxia) in the arms and legs, fatigue, energy deprivation and muscle loss, vision

FA is an inherited or single gene disorder. Mutations or DNA changes in the FXN gene cause FA. It is

Symptoms of FA includes loss of coordination (ataxia) in the arms and legs, fatigue, energy deprivation and muscle loss, vision

Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have

Sometimes I wish I still lived in my 22-year-old world where I’d never heard of Friedreich’s Ataxia in 2010. I

FA is definitely a crazy, unexpected, devastating, and unwelcome storm. However, I am so thankful for the path it cleared

I am thankful for my walker. I am thankful for my village that made this adjustment smoother than I anticipated.

I’m also glad that I didn’t respond with the panic that was rising in me. I’m thankful that I took

Physical therapy is a mental, physical, and emotional workout now. It helps me fight disease progression yet also makes me

Being informed and choosing to stay positive is the best way to approach a progressive disease, in my opinion. I