Voices of Friedreich's Ataxia (FA)

All of this is to say that when my cup is running low because FA has drained it, I need

I believe that if I do the work to be self-aware, taking full responsibility for my actions and letting go

In other words, I’m bringing all the feels with me to Emory in Atlanta today. Please join me in praying

Although I think that I needed these reminders more than she did, I am thankful I had the opportunity to

FA is a relentlessly challenging mountain range, but surrounded by the right people and moving at an appropriate speed, we

FA is a relentless challenge, but I know that I can make it through, despite my disability. Not only that,

I am realistic, and I know that I can’t always compartmentalize FA. This huge monster in my life refuses to

A neurologist will use several tests to reach a diagnosis of FA . Typically, diagnosis begins with a basic physical

There are currently no treatments for FA. Patients are monitored for symptom management. FARA is funding research to find treatments

FA is an inherited or single gene disorder. Mutations or DNA changes in the FXN gene cause FA. It is