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Voices of Friedreich's Ataxia (FA)

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Friedreich’s ataxia life expectancy

Introduction Living with Friedreich’s Ataxia (FA) demands courage and adaptability. This progressive neurological disorder affects individuals like Sarah Thompson, a...

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What part of the brain is affected by Friedreich’s ataxia?

While F A is relatively rare, it is the most common form of inherited ataxia. It is sometimes confused with...

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What are the speech-related issues in F A?

The main problem is dysarthria, which means a motor speech disorder, not a cognitive speech disorder. Cognition is generally intact...

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A SLOPPY SUN

On May 2, 2022 By voicesoffa
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Lessons from First Graders by Kendall Harvey

On April 29, 2022 By voicesoffa
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One of my biggest fears about being a mother with Friedreich’s Ataxia is my kids experiencing ridicule or bullying because

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Respecting My Body Despite FA by Kendall Harvey

On April 27, 2022 By voicesoffa
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“I wish that I didn’t have F A.” I wish that things came naturally to me, that it was easy

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Becoming Dependent Restored My Independence by Kendall Harvey

On April 25, 2022 By voicesoffa
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Yes, I know that falls are still possible even with my walker, but that possibility is greatly reduced since I

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What Fundraising Means to Me by Kendall Harvey

On April 23, 2022 By voicesoffa
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Fundraising isn’t fun for me and I don’t like being vulnerable by asking for help. I’m kept up at night

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Austin Knows How to Treat People with Disabilities by Kendall Harvey

On April 22, 2022 By voicesoffa
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I am so blessed by the acceptance, kindness, accommodations, and support I have received. I adore my city and I

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Walkers and Curious Kids by Kendall Harvey

On April 21, 2022 By voicesoffa
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Kindness matters. It is key to a tolerant attitude of acceptance. If we can keep modeling that mindset and approach

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Wishing Away FA by Kendall Harvey

On April 20, 2022 By voicesoffa
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I will continue to muster strength. I will continue to fight. I will keep moving forward, no matter what comes

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Celebrate ALL Milestones by Kendall Harvey

On April 19, 2022 By voicesoffa
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I am looking forward to even more beautiful memories because I am not going to let ANYTHING stop me from

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Donning my FA Hat by Kendall Harvey

On April 18, 2022 By voicesoffa
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I’ve decided that I will trade my worry for peace. As the book “Jesus Calling: Enjoying Peace in His Presence,”

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