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Voices of Friedreich's Ataxia (FA)

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Friedreich’s ataxia life expectancy

Introduction Living with Friedreich’s Ataxia (FA) demands courage and adaptability. This progressive neurological disorder affects individuals like Sarah Thompson, a...

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What part of the brain is affected by Friedreich’s ataxia?

While F A is relatively rare, it is the most common form of inherited ataxia. It is sometimes confused with...

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What are the speech-related issues in F A?

The main problem is dysarthria, which means a motor speech disorder, not a cognitive speech disorder. Cognition is generally intact...

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My Journey to a Friedreich’s Ataxia(FA) Diagnosis PART 2 by Kendall Harvey

On June 6, 2022 By voicesoffa
  • Youtube Videos

The FA community is one of hope and passion. I have met the most amazing and inspiring people in this

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My Journey to a Friedreich’s Ataxia Diagnosis PART 1 by Kendall Harvey

On June 4, 2022 By voicesoffa
  • Youtube Videos

The FA community is one of hope and passion. I have met the most amazing and inspiring people in this

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A Friedreich’s Ataxia Explainer by Kendall Harvey

On June 3, 2022 By voicesoffa
  • Youtube Videos

What causes FA? FA is genetic. I received a faulty recessive gene from both of my parents. The condition is

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Similarities in Parenting and FA by Kendall Harvey

On June 2, 2022 By voicesoffa
  • Youtube Videos

Both parenting and FA take a village to get through the day (for the big stuff and little everyday stuff.)

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When Life Hands You Lemon by Kendall Harvey

On June 1, 2022 By voicesoffa
  • Youtube Videos

“Life isn’t fair.” And “life is hard.” Well, yeah, it is hard. Did you ever hear it would be easy?

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Starting a Clinical Trial (FA) by Kendall Harvey

On May 31, 2022 By voicesoffa
  • Youtube Videos

Every day, I go through so many thought cycles. I think, “Well, my speech seems a little better, and I’m

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Approaching Everyday Problems as Opportunities for Growth by Kendall Harvey

On May 30, 2022 By voicesoffa
  • Youtube Videos

The relentless problems I face because of FA hold something grand: relentless opportunities. Every minute of every day, I have

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My Main FA Symptoms, Visible and Not by Kendall Harvey

On May 28, 2022 By voicesoffa
  • Youtube Videos

I naively had no idea that scoliosis could cause chronic back pain, but here I am, experiencing it. That is

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I Am Not My Disability by Kendall Harvey

On May 27, 2022 By voicesoffa
  • Youtube Videos

Instead of saying that I am disabled, I will try to adjust my phrasing and, hopefully, my mindset so that

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What I Hope My Kids Will Inherit From My Life With FA by Kendall Harvey

On May 27, 2022 By voicesoffa
  • Youtube Videos

FA has brought so much that is unexpected into our lives, and we are all learning how to handle what

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