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Friedreich’s ataxia life expectancy

Introduction Living with Friedreich’s Ataxia (FA) demands courage and adaptability. This progressive neurological disorder affects individuals like Sarah Thompson, a...

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What part of the brain is affected by Friedreich’s ataxia?

While F A is relatively rare, it is the most common form of inherited ataxia. It is sometimes confused with...

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What are the speech-related issues in F A?

The main problem is dysarthria, which means a motor speech disorder, not a cognitive speech disorder. Cognition is generally intact...

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What are my responsibilities as a participant?

On July 11, 2022 By voicesoffa
  • Youtube Videos

You are required to comply with the study protocol of clinical trial (visits, treatment, keeping notes, etc.). Tell study investigators

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What are my rights as a clinical trial participant?

On July 9, 2022 By voicesoffa
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As a potential clinical trial participant, you have a right to receive a written description of the trial specifics and

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Who is on a clinical trial team?

On July 8, 2022 By voicesoffa
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Clinical trials are run at institutions and hospitals by a clinical trial team. Each trial is led by a principal

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Who can participate in a clinical trial?

On July 7, 2022 By voicesoffa
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People of all ages, races, ethnicities and genders can participate. Each study has its own inclusion and exclusion criteria to

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Why you should participate in a clinical trial?

On July 6, 2022 By voicesoffa
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Participating in a clinical trial may help accelerate the development of new treatments, increase knowledge about a disease or even

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What is a Clinical Trial?

On July 5, 2022 By voicesoffa
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Clinical trials are research studies conducted to determine whether a medical strategy, treatment or device is safe and effective for

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An Open Letter to My Parents by Kendall Harvey

On July 4, 2022 By voicesoffa
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It’s one thing to go through a hardship yourself, but it’s another thing entirely to watch a hardship happen to

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Words to Live By, By Kendall Harvey

On July 2, 2022 By voicesoffa
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So often, it is all too easy to get caught up in the drama of life. To throw pity parties,

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Why do FA patients ride trikes? by Kendall Harvey

On July 1, 2022 By voicesoffa
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I am sure you have noticed that a lot of my pictures for RideATAXIA are of me on a recumbent

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Horizon Interferon Gamma Trial by Kendall Harvey

On June 30, 2022 By voicesoffa
  • Youtube Videos

In 2016 the Friedreich’s Ataxia (F A) community recently had the unfortunate news about the Horizon Interferon Gamma Trial ending

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