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Friedreich’s ataxia life expectancy

Introduction Living with Friedreich’s Ataxia (FA) demands courage and adaptability. This progressive neurological disorder affects individuals like Sarah Thompson, a...

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What part of the brain is affected by Friedreich’s ataxia?

While F A is relatively rare, it is the most common form of inherited ataxia. It is sometimes confused with...

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What are the speech-related issues in F A?

The main problem is dysarthria, which means a motor speech disorder, not a cognitive speech disorder. Cognition is generally intact...

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What questions should I ask my doctor about my role before participating in a trial? Part 2

On August 6, 2022 By voicesoffa
  • Youtube Videos

•How long will the study last?• Will I be allowed to participate in another clinical trial if another one comes

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What questions should I ask my doctor about my role before participating in a trial? Part 1

On August 5, 2022 By voicesoffa
  • Youtube Videos

• What will I have to do?•Will I have to stop taking any of my current medications or supplements to

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What questions should I ask my doctor or study coordinator before deciding to participate in a trial? part 3

On August 3, 2022 By voicesoffa
  • Youtube Videos

•How do the possible risks, side effects and benefits of this trial compare with those of my current treatment plan?•

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What questions should I ask my doctor or study coordinator before deciding to participate in a trial? part 2

On August 2, 2022 By voicesoffa
  • Youtube Videos

• How will I know which intervention I receive during the trial? Will I know? Will members of the research

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What questions should I ask myself before deciding to participate in a clinical trial?

On July 30, 2022 By voicesoffa
  • Youtube Videos

• Why do I want to participate in the clinical trial?• What are my goals and expectations if I were

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Observational Study

On July 29, 2022 By voicesoffa
  • Youtube Videos

In an observational study, investigators assess health outcomes in groups of participants according to a protocol or research plan. Participants

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Natural History Study

On July 27, 2022 By voicesoffa
  • Youtube Videos

In a natural history study, investigators follow a group of people over time who have, or are at risk of

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Phase 4 Clinical Trial

On July 26, 2022 By voicesoffa
  • Youtube Videos

In phase 4 clinical trial, approved drugs are monitored over a period of time in phase 4 studies. Although these

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Phase 3 Clinical Trial

On July 25, 2022 By voicesoffa
  • Youtube Videos

Phase 3 clinical trial is “confirmatory” phase, the number of participants is increased and the experimental drug is tested against

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Phase 2 Clinical Trial

On July 23, 2022 By voicesoffa
  • Youtube Videos

Phase 2 studies are designed to assess whether an experimental treatment works. The trial may involve healthy volunteers or people

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