Voices of Friedreich's Ataxia (FA)

I often write about how important it is to have a strong village supporting you in life — not only

Life with Friedreich’s ataxia (FA) can feel daunting as we face hardships, struggles, and countless tribulations. Most FA patients I

All of this to say: Please be a courteous stranger. It’s completely natural to be curious about a woman and

Every time we get a couple of weeks into a new season of life, like “back to school”, summer break,

Since the beginning of my journey with Friedreich’s ataxia (FA), worries about the future have plagued me. Would I have

It’s not uncommon for me to throw myself pity parties. Living with Friedreich’s ataxia (FA) is a constant battle. I

9 years ago today, my friends and I won the sand volleyball championship! What you can’t see in this picture

Before FA, I never aspired to be an inspiration, but perhaps that is my purpose in life. Even though most

As I was headed into my eighth Mother’s Day weekend. I know for sure is that I am meant to

What questions should I ask my doctor about my post-trial period? • What type of long-term follow-up care is part