After waiting for what seemed like forever for a diagnosis, it didn’t take me long to get my head around it. Life wasn’t going to be what I imagined, but I was determined to make the most out of life (and still am). Since then I’ve learnt a hell of a lot about FA and myself and met some incredible people along the way. You can still live a great life with FA, it just requires a bit of planning (or a lot sometimes!)

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