My Loved Ones Perceive My Symptom Progression Differently by Kendall Harvey

When I was first symptomatic, I tried so hard to look “normal” when I was in public and around complete strangers. I would overcompensate, not taking into account how much this extra effort would affect my fatigue and make everything worse when the people that actually mattered most, my family, would need me to be functional. So, I swallowed my pride. I realized that while FA affects those around me, I am the one living with the disease. I need to prioritize my health by taking care of myself physically and mentally. When I am my best, I can help guide others through my “new normal.”