The FA community is one of hope and passion. I have met the most amazing and inspiring people in this community. As my friend and fellow FA patient, Madelyn Frederick said, “The biggest monster Friedreich’s Ataxia (FA) entered my life, and I had no way of defeating it, or even the capability of shrinking it. The only thing I could do is figure out how to grow bigger than it.”
Nothing can prepare you for a diagnosis like FA. But it isn’t the end. Life goes on. It’s hard, frustrating and sad fighting FA everyday. But the fight is so worth it because life can be SO BEAUTIFUL, even with FA.