Life with Friedreich’s ataxia (FA) requires constant adjustment and acceptance. I have to adjust to new symptoms regularly, whether they are temporary, like extra fatigue during a particularly busy season, or permanent, like the frustrating decrease in my walking speed.I have to adjust to safely accommodate these new symptoms in my daily routine. I go to bed earlier than I would prefer so that my body can rest, and I wake up earlier to ensure that I have enough time to help my family get their day started to make up for my new slower pace.

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