One of my biggest fears about being a mother with Friedreich’s Ataxia is my kids experiencing ridicule or bullying because of me. I want my kids to be strong, kind and compassionate, but I know that kids can be mean. Right now, I’m just “mom” to my kids. They don’t seem to notice or mind that I use a walker and can’t do things other parents do… yet. I know the day will come and we will need to have tough conversations, and I pray daily for grace and wisdom to navigate those talks.
Voices of Friedreich's Ataxia (FA)
We Have the Power to Overcome Anything, Together!