Kids are a lot more resilient and flexible than we give them credit for. While I assume they wouldn’t have chosen to have a “disabled mom,” their perspective will uniquely shape their hearts and minds. Maybe watching their mom progress through a rare disease will spur them to pursue a life in the medical field, and they will become the brilliant mind that eventually finds a cure for F A! Maybe seeing the emotional effects of my physical disabilities will shape their hearts so they can help other patients and loved ones walk this journey. This resilience and perspective will help with the inevitable tough conversations that are in the future for my family. I will do my best to guide them through the process of accepting F A as I continue down that path daily. For now, I am thankful my children are healthy and F A-free. I am thankful I am just “Mom” to them. I am thankful for my village that helps me navigate the waters of parenting with F A, even without an official guidebook.
Voices of Friedreich's Ataxia (FA)
We Have the Power to Overcome Anything, Together!