Finding Hope Amidst a Debilitating Disability

I am now 27 years old, a university-graduate, a FA ambassador and advocate, I am on the board of a support group for FA and I live my life out loud. I help people in the FA community in any way I can, I organise fundraisers and nothing can dampen my hope for a treatment or cure. I show through my life that disability is no boundary. I embrace my challenges and I think that this is exactly what I was born to do.