The Collaborative Clinical Research Network in Friedreich’s Ataxia (CCRN in FA) is an international network of clinical research centers that work together to advance treatments and clinical care for individuals with Friedreich’s ataxia. The network collaborates with pharmaceutical companies, government agencies, and other research centers, and the patient community to facilitate clinical research and trials needed to identify new therapies.
Each of the CCRN in FA sites is a place where FA patients can go to participate in research studies and receive clinical care. At every site, researchers are conducting natural history studies and clinical trials. The doctors and coordinators at each of these sites are very familiar with medical issues related to FA.