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Voices of Friedreich's Ataxia (FA)

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Category: Youtube Videos

This section contains all the Youtube Videos!

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  • Page 22

Self-awareness Helps Me Navigate the Unexpected by Kendall Harvey

On April 5, 2022 By voicesoffa
  • Youtube Videos

I believe that if I do the work to be self-aware, taking full responsibility for my actions and letting go

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First 2022 Clinical Trial Visit by Kendall Harvey

On April 4, 2022 By voicesoffa
  • Youtube Videos

In other words, I’m bringing all the feels with me to Emory in Atlanta today. Please join me in praying

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Reminding Myself to Focus on the Positive by Kendall Harvey

On April 2, 2022 By voicesoffa
  • Youtube Videos

Although I think that I needed these reminders more than she did, I am thankful I had the opportunity to

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Following These 3 Rules Enables Me to Live Well With FA by Kendall Harvey

On April 1, 2022 By voicesoffa
  • Youtube Videos

FA is a relentlessly challenging mountain range, but surrounded by the right people and moving at an appropriate speed, we

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What is the hardest part about living with Friedreich’s ataxia? by Kendall Harvey

On March 31, 2022 By voicesoffa
  • Youtube Videos

FA is a relentless challenge, but I know that I can make it through, despite my disability. Not only that,

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My FA Status Update: It’s Complicated by Kendall Harvey

On March 30, 2022 By voicesoffa
  • Youtube Videos

I am realistic, and I know that I can’t always compartmentalize FA. This huge monster in my life refuses to

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DIAGNOSIS OF FRIEDREICH’S ATAXIA

On March 28, 2022 By voicesoffa
  • Youtube Videos

A neurologist will use several tests to reach a diagnosis of FA . Typically, diagnosis begins with a basic physical

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TREATMENTS OF FRIEDREICH’S ATAXIA

On March 26, 2022 By voicesoffa
  • Youtube Videos

There are currently no treatments for FA. Patients are monitored for symptom management. FARA is funding research to find treatments

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CAUSES OF FRIEDREICH’S ATAXIA PART 3

On March 25, 2022 By voicesoffa
  • Youtube Videos

FA is an inherited or single gene disorder. Mutations or DNA changes in the FXN gene cause FA. It is

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CAUSES OF FRIEDREICH’S ATAXIA PART 2

On March 24, 2022 By voicesoffa
  • Youtube Videos

Symptoms of FA includes loss of coordination (ataxia) in the arms and legs, fatigue, energy deprivation and muscle loss, vision

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