I am going to celebrate all the wonderful blessings in my life. I will enjoy the activities that I can,

What we have learned is that FA symptoms are caused by low cellular levels of a substance called frataxin, due

A year from now, my life will be completely different again! My little family of 2 will have expanded to

Pregnancy and FA and being a mom to this sweet baby boy is the greatest thing I have ever done.

Friedreich’s Ataxia and pregnancy seems a bit difficult to handle, My pregnancy was very normal and fairly uneventful. All of

In this feature-length documentary, filmmakers and childhood friends, Kevin Schlanser and Zack Bennett, capture what is a grueling 9-day non-stop

I don’t use a walker in public yet, but I heavily depend on shopping carts at stores. Some people are

A recent foreign study is creating a lot of buzz in the Friedreich’s Ataxia (F A) community.“Injections of vitamin B1

How fitting. How convicting. How challenging. Yet through the eyes of my sweet beautiful (Toddler) boy, it’s all so simple.

When I first met Ron Bartek, the President of FARA, he said “we are in the business of going out