My will for life is a fulfilling existence in which I embrace the opportunity, enjoy every available experience, laugh often, shine God’s light, and always try to help those around me. F A seems determined to suck all of that will out of me and replace it with endless challenges. So while I can no longer use my body “to run, pick things up, make things happen” the same way I once could, I can still seek opportunities to accomplish my will. It will probably look and feel different than I wish it would — but that’s OK! Just like when I try new things in physical therapy, it might take my all and leave me with a mix of emotions, but at least I am still trying to stay in tune with my instrument: my body.
Voices of Friedreich's Ataxia (FA)
We Have the Power to Overcome Anything, Together!