Since the beginning of my journey with Friedreich’s ataxia (FA), worries about the future have plagued me. Would I have a future? What would it look like?
As I learned more about FA, one word stood out: progressive. Everything boiled down to progressing symptoms: My balance and coordination would progressively degenerate, my speech would become progressively slower and more slurred, my dexterity would progressively deteriorate, and my fatigue and scoliosis would progressively worsen. Basically, I would progressively become more disabled as time went on.
While I know the basics of what FA has in store for me, my future is as unknown as anyone else’s. I plan on facing my disease progression with adaptability, grace, and patience while I trust in God, the one who holds my future.