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Voices of Friedreich's Ataxia (FA)

Voices of Friedreich's Ataxia (FA)

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Year: 2022

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  • 2022
  • Page 27

I’m Not Giving Up, I’m Just Adapting to My Disease Progression by Kendall Harvey

On January 22, 2022 By voicesoffa
  • Youtube Videos

When will it happen, and how will it look? I’m not yet sure. My physical therapist and I are working

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I’m Not Alone in Carrying the Burden of FA by Kendall Harvey

On January 21, 2022 By voicesoffa
  • Youtube Videos

At times, it feels like I am surrounded by the burden of FA, but I am so thankful for weekends

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The Parallels Between Living With FA and Riding My Trike by Kendall Harvey

On January 20, 2022 By voicesoffa
  • Youtube Videos

When I ride my trike, I get a lot of looks. People will say, “That looks fun,” “My turn next,”

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Precious Moments by Kendall Harvey

On January 19, 2022 By voicesoffa
  • Youtube Videos

Every morning, Collins sees me take my clinical trial study drug. She sees my hope and frustration. She sees everything.This

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“Until there’s a cure, there’s a dog.” by Kendall Harvey

On January 18, 2022 By voicesoffa
  • Youtube Videos

So incredibly thankful for my mobility service dog (in training) and the hope, companionship, purpose, and joy that he brings

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Entering 2022 With a Fresh Perspective on FA by Kendall Harvey

On January 17, 2022 By voicesoffa
  • Youtube Videos

This year was a roller-coaster ride full of hopes, fears, triumphs, heartaches, and trials. Problems persisted, trials were resolved, obstacles

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New Year, New Me, and Same FA by Kendall Harvey

On January 14, 2022 By voicesoffa
  • Youtube Videos

I guess that the new year brought a more pragmatic approach to my FA, rather than an emotional and idealistic

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How I Learned to Shine Rather Than Whine by Kendall Harvey

On January 8, 2022 By voicesoffa
  • Youtube Videos

With the progressive and degenerative nature of my symptoms, I can’t necessarily make my body feel better, but I can

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A Springtime Perspective on What FA Has Given Me by Kendall Harvey

On January 7, 2022 By voicesoffa
  • Youtube Videos

I will appreciate this spring for what it is. We can clear out overgrown bushes and trees in our yard

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How My Disability Influences the Way My Children Daydream by Kendall Harvey

On January 6, 2022 By voicesoffa
  • Youtube Videos

I am grateful that my children won’t have to fight the battle against FA personally. I am humbled that my

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