I’m Not Giving Up, I’m Just Adapting to My Disease Progression by Kendall Harvey
When will it happen, and how will it look? I’m not yet sure. My physical therapist and I are working
Voices of Friedreich's Ataxia (FA)
We Have the Power to Overcome Anything, Together!
When will it happen, and how will it look? I’m not yet sure. My physical therapist and I are working
At times, it feels like I am surrounded by the burden of FA, but I am so thankful for weekends
When I ride my trike, I get a lot of looks. People will say, “That looks fun,” “My turn next,”
Every morning, Collins sees me take my clinical trial study drug. She sees my hope and frustration. She sees everything.This
So incredibly thankful for my mobility service dog (in training) and the hope, companionship, purpose, and joy that he brings
This year was a roller-coaster ride full of hopes, fears, triumphs, heartaches, and trials. Problems persisted, trials were resolved, obstacles
I guess that the new year brought a more pragmatic approach to my FA, rather than an emotional and idealistic
With the progressive and degenerative nature of my symptoms, I can’t necessarily make my body feel better, but I can
I will appreciate this spring for what it is. We can clear out overgrown bushes and trees in our yard
I am grateful that my children won’t have to fight the battle against FA personally. I am humbled that my