Parenting is emotional no matter your health, so it’s no surprise that parenting with a chronic illness is a roller

All this is to say: I am happy to talk about FA, but I usually won’t bring it up first.

Love this reminder as I (im)patiently await a cure for Friedreichs Ataxia. Life is beautiful, even with this ugly disease.

FA is emotional. I feel hopeless, exhaust,ed and terrified about my future. I feel like I’m carrying a weight that

I appreciate the underlying narrative of the stories in which kindness, strength, goodness, love, and bravery triumph over hardships. I

I often feel like my walker is a barrier between me and the able-bodied world when really it is my

If you really want to know what life with FA is like behind closed doors, scroll through my collection of

My kids are SUPER into hiding and seek right now. They play it with Kyle for about 45 minutes every

Life is full of possibilities and chances to do your best. Even if your best looks different than you expected,

Yet this is the reality of my disease. My body is less capable than I ever expected or wished for.