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Voices of Friedreich's Ataxia (FA)

Voices of Friedreich's Ataxia (FA)

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Month: August 2022

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How I ‘Take Heart’ on My FA Journey by Kendall Harvey

On August 17, 2022 By voicesoffa
  • Youtube Videos

Life with Friedreich’s ataxia (FA) can feel daunting as we face hardships, struggles, and countless tribulations. Most FA patients I

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The Delicate Art of Fielding Questions as a stranger by Kendall Harvey

On August 16, 2022 By voicesoffa
  • Youtube Videos

All of this to say: Please be a courteous stranger. It’s completely natural to be curious about a woman and

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Wishful Thinking by Kendall Harvey

On August 15, 2022 By voicesoffa
  • Youtube Videos

Every time we get a couple of weeks into a new season of life, like “back to school”, summer break,

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Facing an Unknown Future as My FA Symptoms Progress by Kendall Harvey

On August 13, 2022 By voicesoffa
  • Youtube Videos

Since the beginning of my journey with Friedreich’s ataxia (FA), worries about the future have plagued me. Would I have

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FA Gives Me a New Reason to Throw Myself a Pity Party by Kendall Harvey

On August 12, 2022 By voicesoffa
  • Youtube Videos

It’s not uncommon for me to throw myself pity parties. Living with Friedreich’s ataxia (FA) is a constant battle. I

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Sand Volleyball Wishes by Kendall Harvey

On August 11, 2022 By voicesoffa
  • Youtube Videos

9 years ago today, my friends and I won the sand volleyball championship! What you can’t see in this picture

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My Journey to Accepting My Responsibility With FA by Kendall Harvey

On August 10, 2022 By voicesoffa
  • Youtube Videos

Before FA, I never aspired to be an inspiration, but perhaps that is my purpose in life. Even though most

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How FA Has Affected My Parenting Abilities by Kendall Harvey

On August 9, 2022 By voicesoffa
  • Youtube Videos

As I was headed into my eighth Mother’s Day weekend. I know for sure is that I am meant to

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What questions should I ask my doctor about my post-trial period?

On August 8, 2022 By voicesoffa
  • Youtube Videos

What questions should I ask my doctor about my post-trial period? • What type of long-term follow-up care is part

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What questions should I ask my doctor about my role before participating in a trial? Part 2

On August 6, 2022 By voicesoffa
  • Youtube Videos

•How long will the study last?• Will I be allowed to participate in another clinical trial if another one comes

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