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Voices of Friedreich's Ataxia (FA)

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Month: August 2022

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Arrhythmia in FA

On August 30, 2022 By voicesoffa
  • Youtube Videos

Enlargement of the heart also can lead to arrhythmia — a heartbeat that’s too fast or slow and doesn’t adjust

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Cardiac difficulties in FA

On August 29, 2022 By voicesoffa
  • Youtube Videos

Heart failure is a leading cause of death in F A. Cardiac abnormalities occur in about 75 percent of people

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Diabetes in FA

On August 27, 2022 By voicesoffa
  • Youtube Videos

About 10 percent of people with FA have diabetes, and another 20 percent have a form of “pre-diabetes” called glucose

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Skeletal abnormalities in FA

On August 26, 2022 By voicesoffa
  • Youtube Videos

Certain skeletal abnormalities are common in FA. Many people experience inversion (inward turning) of the feet, and a little over

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Sensory impairment in FA

On August 25, 2022 By voicesoffa
  • Youtube Videos

Sensory impairment in FA includes Loss of tactile (touch) sensation, which is a cardinal symptom of FA but is often

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Ataxia, weakness, and spasticity in Friedreich’s ataxia (FA)

On August 24, 2022 By voicesoffa
  • Youtube Videos

Usually, ataxia first affects the legs and torso, causing frequent tripping, poor performance in sports, or just an unsteady walk.

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The Against-the-Odds Impact That Being Rare Has on My Life by Kendall Harvey

On August 22, 2022 By voicesoffa
  • Youtube Videos

I know that I’m rare, and I’m uniquely qualified to handle this life. I have my “four F’s”:Feelings: I know

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What Is the Opposite of My Life With FA? by Kendall Harvey

On August 20, 2022 By voicesoffa
  • Youtube Videos

Since I don’t think life with FA can be captured in one word, I don’t think the opposite can be,

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FA Forces Me to Process and Cope With Fear by Kendall Harvey

On August 19, 2022 By voicesoffa
  • Youtube Videos

When you live under the banner of a degenerative disease such as Friedreich’s ataxia (FA), you become well acquainted with

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An Open Letter to My Friends by Kendall Harvey

On August 18, 2022 By voicesoffa
  • Youtube Videos

I often write about how important it is to have a strong village supporting you in life — not only

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