In 2016 the Friedreich’s Ataxia (F A) community recently had the unfortunate news about the Horizon Interferon Gamma Trial ending

I am honored to be included in his beautiful drawing – I am grateful that he sees my attempts to

I am going to celebrate all the wonderful blessings in my life. I will enjoy the activities that I can,

What we have learned is that FA symptoms are caused by low cellular levels of a substance called frataxin, due

A year from now, my life will be completely different again! My little family of 2 will have expanded to

Pregnancy and FA and being a mom to this sweet baby boy is the greatest thing I have ever done.

Friedreich’s Ataxia and pregnancy seems a bit difficult to handle, My pregnancy was very normal and fairly uneventful. All of

In this feature-length documentary, filmmakers and childhood friends, Kevin Schlanser and Zack Bennett, capture what is a grueling 9-day non-stop

I don’t use a walker in public yet, but I heavily depend on shopping carts at stores. Some people are

A recent foreign study is creating a lot of buzz in the Friedreich’s Ataxia (F A) community.“Injections of vitamin B1