FA is definitely a crazy, unexpected, devastating, and unwelcome storm. However, I am so thankful for the path it cleared

I am thankful for my walker. I am thankful for my village that made this adjustment smoother than I anticipated.

I’m also glad that I didn’t respond with the panic that was rising in me. I’m thankful that I took

Physical therapy is a mental, physical, and emotional workout now. It helps me fight disease progression yet also makes me

Being informed and choosing to stay positive is the best way to approach a progressive disease, in my opinion. I

I am glad that I didn’t overthink the decision to get a new dog. My family would have missed out

Parenting is emotional no matter your health, so it’s no surprise that parenting with a chronic illness is a roller

All this is to say: I am happy to talk about FA, but I usually won’t bring it up first.

Love this reminder as I (im)patiently await a cure for Friedreichs Ataxia. Life is beautiful, even with this ugly disease.

FA is emotional. I feel hopeless, exhaust,ed and terrified about my future. I feel like I’m carrying a weight that