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Voices of Friedreich's Ataxia (FA)

Voices of Friedreich's Ataxia (FA)

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Month: March 2022

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What is the hardest part about living with Friedreich’s ataxia? by Kendall Harvey

On March 31, 2022 By voicesoffa
  • Youtube Videos

FA is a relentless challenge, but I know that I can make it through, despite my disability. Not only that,

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My FA Status Update: It’s Complicated by Kendall Harvey

On March 30, 2022 By voicesoffa
  • Youtube Videos

I am realistic, and I know that I can’t always compartmentalize FA. This huge monster in my life refuses to

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DIAGNOSIS OF FRIEDREICH’S ATAXIA

On March 28, 2022 By voicesoffa
  • Youtube Videos

A neurologist will use several tests to reach a diagnosis of FA . Typically, diagnosis begins with a basic physical

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TREATMENTS OF FRIEDREICH’S ATAXIA

On March 26, 2022 By voicesoffa
  • Youtube Videos

There are currently no treatments for FA. Patients are monitored for symptom management. FARA is funding research to find treatments

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CAUSES OF FRIEDREICH’S ATAXIA PART 3

On March 25, 2022 By voicesoffa
  • Youtube Videos

FA is an inherited or single gene disorder. Mutations or DNA changes in the FXN gene cause FA. It is

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CAUSES OF FRIEDREICH’S ATAXIA PART 2

On March 24, 2022 By voicesoffa
  • Youtube Videos

Symptoms of FA includes loss of coordination (ataxia) in the arms and legs, fatigue, energy deprivation and muscle loss, vision

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CAUSES OF FREIDREICH’S ATAXIA PART 1

On March 23, 2022 By voicesoffa
  • Youtube Videos

FA is an inherited or single gene disorder. Mutations or DNA changes in the FXN gene cause FA. It is

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SYMPTOMS OF FRIEDREICH’S ATAXIA

On March 22, 2022 By voicesoffa
  • Youtube Videos

Symptoms of FA includes loss of coordination (ataxia) in the arms and legs, fatigue, energy deprivation and muscle loss, vision

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What is Friedreich’s ataxia?

On March 22, 2022 By voicesoffa
  • Youtube Videos

Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have

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2010 to 2020 by Kendall Harvey

On March 19, 2022 By voicesoffa
  • Youtube Videos

Sometimes I wish I still lived in my 22-year-old world where I’d never heard of Friedreich’s Ataxia in 2010. I

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