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Voices of Friedreich's Ataxia (FA)

Voices of Friedreich's Ataxia (FA)

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Month: January 2022

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  • 2022
  • January

The Battle Between Taking Care of Myself and Letting FA Ruin My Life by Kendall Harvey

On January 31, 2022 By voicesoffa
  • Youtube Videos

Having FA is a lot of work. Battling fatigue is exhausting and ever-changing. There is no quick fix for this

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Finding Peace in the “AND”By Kendall Harvey

On January 29, 2022 By voicesoffa
  • Youtube Videos

Motherhood is a lifelong calling. We will go through so many phases, experiences, events, milestones, and setbacks, and there is

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The Balancing Act of FA by Kendall Harvey

On January 27, 2022 By voicesoffa
  • Youtube Videos

Making memories, sharing experiences, trying new things, and maintaining traditions are worth the effort. Life is worth the risk. But

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New Mobility Aid Blues by Kendall Harvey

On January 26, 2022 By voicesoffa
  • Youtube Videos

This latest tool in my Friedreich’s Ataxia mobility aid arsenal has me feeling blue. I have had a handful of

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Walker Buddy by Kendall Harvey

On January 25, 2022 By voicesoffa
  • Youtube Videos

My kiddos each got a new kitten from Santa this year. Brooks’ cat, Travis, loves to ride around on my

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Finding Contentment With Myself Tops This Year’s Christmas List by Kendall Harvey

On January 24, 2022 By voicesoffa
  • Youtube Videos

It doesn’t say to ignore the other things, it just says to think about the good things. Spend time reveling

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I’m Not Giving Up, I’m Just Adapting to My Disease Progression by Kendall Harvey

On January 22, 2022 By voicesoffa
  • Youtube Videos

When will it happen, and how will it look? I’m not yet sure. My physical therapist and I are working

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I’m Not Alone in Carrying the Burden of FA by Kendall Harvey

On January 21, 2022 By voicesoffa
  • Youtube Videos

At times, it feels like I am surrounded by the burden of FA, but I am so thankful for weekends

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The Parallels Between Living With FA and Riding My Trike by Kendall Harvey

On January 20, 2022 By voicesoffa
  • Youtube Videos

When I ride my trike, I get a lot of looks. People will say, “That looks fun,” “My turn next,”

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Precious Moments by Kendall Harvey

On January 19, 2022 By voicesoffa
  • Youtube Videos

Every morning, Collins sees me take my clinical trial study drug. She sees my hope and frustration. She sees everything.This

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