One of the aspects I avoid thinking about or sharing about Friedreich’s Ataxia is how it is a life-shortening disease.

I am reminded that there can be peace in the “and,” that it is possible to fear a loss of

That’s not to say that I am no longer afraid of what F A has in store for me, but

I am so thankful for the people and events that shaped me into who I was before FA, and for

In summary then, there’s an enormous amount of research going on in FA right now, and exciting progress is being

According to Deloitte, smartphone penetration in Australia is at almost the highest level in the world, at 88% in 2017.

Identifying biomarkers that support prediction as FA progresses is important for many reasons; for example, robust biomarkers are of immense

While I am increasingly losing control over what my body goes through, I can grow in other ways. I can

After waiting for what seemed like forever for a diagnosis, it didn’t take me long to get my head around

I am at a stage in my acceptance of Friedreich’s Ataxia, where I am not always looking for a cure