For better or worse, I am the only mom that my kids have. I need to be gracious and let

When the world stopped for COVID19, Friedreich’s Ataxia didn’t stop. My progression didn’t stop. However, physical therapy did. I missed

I never expected to be a disabled mom. But here I am, embracing my handicaps and making the most of

My whole life I have LOVED swimming. It has always been a huge part of my life. Even after Friedreich’s

Yes, FA is a frustrating and ever-progressing obstacle. Although my abilities are strained and limited, I am thankful for my

I don’t know if I will ever return to celebrating Aug. 19. I think the weight of the day gets

Life with Friedreich’s ataxia (FA) requires constant adjustment and acceptance. I have to adjust to new symptoms regularly, whether they

Kids are a lot more resilient and flexible than we give them credit for. While I assume they wouldn’t have

Yes, I have Friedreich’s Ataxia. Yes, I use a walker because my FA has control of my legs. But FA

I felt equal parts disabled and victorious today. I tackled Costco solo. The carts at this Costco are really far